Although fibromyalgia is quite common, it's so misunderstood and misdiagnosed that it takes an average of 5 years for a person with the painful condition to finally get diagnosed.
June 13, 2023 – In 1993, Lynne Matallana was living a “wonderful life.” Newly married, the 38-year-old Californian was a partner in an advertising agency. But her life was upended after surgery for endometriosis.
Still, she said, this was “back in 1995, and not much was known about fibromyalgia, and the doctors basically said there was nothing they could do for me.”, it continues to be misdiagnosed and misunderstood. In fact, the average time for a patient to get diagnosed with fibromyalgia can be as much as 5 years.
Alterations were also found in signal transmission in the thalamus – a brain region known to play a central role in pain processing. The differences in white matter between patients and healthy controls suggested that there were modifications in the pain signals in people with fibromyalgia. These findings are neither “new nor surprising,” Daniel Clauw, MD, a professor of anesthesiology, rheumatology, and psychiatry at the University of Michigan, said in an interview.
Matallana, who is the co-founder and director of the National Fibromyalgia Association, said that although the study may not contain dramatically new findings, “when it comes to research about pain, people really have to hear the same things over and over again before the medical system decides that pain is something real.”
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