Have you seen the spoonie hashtag on social media and are wondering what it’s all about? Five women with chronic health conditions share what the word means to them.
people don’t need to worry about the knock-on impact to their energy levels from doing seemingly mundane activities, such as getting dressed or driving to work; The Spoon Theory seeks to address the ways in which chronic illnesses can do just that.
If a spoon is a unit of energy, when they’ve all been used up that day, so too has a ‘spoonie’s’ capacity to manage without feeling more unwell. Should we go over our allotted spoons, that’s when post-exertional malaise can kick in, which will restrict the next day’s activities too. Similarly, because spoonies have a finite set of spoons to work with on a day-to-day basis, they often have to choose between which activities they do or miss out on.
A flare-up of symptoms or stress caused by appointments or unexpected life events can impact the spoon count further and daily usage fluctuates too. That’s why the spoon theory is so accurate and helpful; it succinctly breaks down the impact that symptoms have on daily life. And as I’ve found, being able to describe the experience of enduring a chronic condition to others makes life a lot easier and adds an element of much-needed control.
With that in mind, we asked five women how using the word spoonie helps them articulate life with a chronic illness.
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