The Leeds Rhinos legend and his wife Lindsey were at Leeds Station today for the launch
MND care centre will have a lasting legacy for people who are diagnosed today and in the future. It won't make the diagnosis any easier but what it will do is give people the reassurance that they are in the best possible care and in an environment that meets their needs, which is really important.
In the face of immense hardship, a community of people with shared experiences have rallied. Among those featured in the exhibition is Jude de Vos, who lost her son Jody to MND in 2017 and believes addressing isolation will be a key benefit of theShe said: “With this centre, it means it will all be in one place. All the support is there. You'll have people around you who also are experiencing it, so you're not so isolated. One unit would be amazing, I wish it was there for Jody and I.
Once up and running, the centre will be operated by Leeds Teaching Hospitals NHS Trust and will be the first of its kind in Europe. Esther Wakeman, chief executive of Leeds Hospitals Charity, said: “Rob is an absolute hero to the MND community for the courage he, and his family, have shown. We are just under halfway to our target to build the new Rob Burrow Centre for Motor Neurone Disease; the hope is this exhibition inspires people to help get us to the finishing line.
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