Louise and David Countenay received a call that revealed that Adam had Sturge-Weber syndrome, an extremely rare condition that affects the brain, eyes and skin.
Loving Barrhead mum Louise Countenay is not a woman of faith. But, since someone told her during a visit to CHAS’s Robin House that she’d been chosen to have son Adam for a reason, those are words she truly believes.
The scan had revealed that Adam had Sturge-Weber syndrome, an extremely rare condition that affects the brain, eyes and skin. Typically, those who have Sturge-Weber syndrome have a port wine stain – a vascular birthmark caused by abnormal development of blood vessels in the skin, as well as an extra layer of blood vessels over the surface of the brain which can cause seizures.
“This was an incredibly hard time for us all, as we discovered more and more complications Adam had. We found out that he would never walk or talk, would never be able to sit up unaided and was almost completely blind. We were devastated and just wanted the world to stop. But we had to carry on, as we had two other children to look after.”
It was soon after hospital staff told Adam’s parents about CHAS and Robin House in January 2018, that they made their first day visit.“We met all the wonderful nurses, doctors and staff who welcomed us with open arms. They made us feel at home straight away and told us all about the hospice and what they could do for us. It was a home-from-home.”
When in 2019 the couple decided to marry, they immediately called Robin House to ask if they would have Adam and his grandparents to stay the night before the wedding.
South Africa Latest News, South Africa Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
David Beckham lookalike hunted by police after theft from builders’ merchantPolice want to trace a man who bears more than a passing resemblance to David Beckham after a theft from a builders’ merchant.
Read more »
David Linden: Solidarity is what brings people of Glasgow togetherRISHI Sunak’s first few days as Prime Minster have been dominated by criticism of his decision to reinstate Suella Braverman as Home Secretary.
Read more »
David Letterman has sat down with Ukrainian President Volodymyr ZelenskyDavid Letterman’s next interview guest has been revealed, and it’s none other than Ukrainian President Volodymyr Zelensky. While details are limited so far, Netflix announced that Letterman recently travelled to Kyiv to interview Zelensky.
Read more »
Accused Paul Pelosi Attacker David DePape Could Be Deported After Release From Custody, DHS SaysThe man accused of attacking House Speaker Nancy Pelosi’s husband could be deported from the U.S. after he is released from custody, DHS said.
Read more »
West Ham boss David Moyes rubbishes claim over World Cup injury fears - 'this is our culture''There’s probably the same number of injuries as there was last season when there was no World Cup, so if people are surprised then they shouldn’t be...' WHUFC
Read more »