While dignity is a laudable goal, so is allowing someone living with dementia to continue to engage with their world. And I feel confident Bruce would agree, writes Meredeth Rowe.
Challenges occur both within the narrow time frame of getting through a single day and in sustaining caregiving across years. One major challenge is the nature of the disease, particularly on a day-to-day basis, which Willis accurately characterizes as quick and unpredictable. These characteristics make dementia caregiving particularly difficult, as almost constant surveillance is required to keep someone with dementia safe.
Family members’ being present in a positive and helpful way is key to supporting their relative with dementia, as well as the primary caregiver. Persons with dementiaand performing at higher levels of function in situations of social pressure, such as talking to their children over phone or media. This can lead to confusion and second-guessing. Visiting in person or maintaining frequent video/phone contact, however, can help family members fully understand the daily and long-term challenges.
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