South Africa needs to consider the development of a national Data Transfer Agreement that integrates both legal and ethical principles for transfers of health research data, including how data will be protected from misuse.
Therefore, we need a streamlined and integrated bioethics approach to the use of such data to help ensure ethical values and principles are respected and not just the legal right to privacy and informed consent. This may be achieved by integrating bioethics into Data Transfer Agreements .Material Transfer Agreement for Human Biological Materials , which guides researchers with respect to transferring samples and data outside the country. But it is very limited in how to deal with data.
To start discussions on how this could be done, the Department of Science and Innovation and the South African Medical Research Council will bring together a diverse set of stakeholders including members of the public to deliberate on developing a national DTA for South Africa on 23 June. To participate, engage and reflect further in these discussions, please register for the webinar by using the following link:The role of Data Transfer Agreements in ethically managing data sharing for research in South Africa | Mahomed | South African Journal of Bioethics and Law
Safia Mahomed, School of Law, University of South Africa & Steve Biko Centre for Bioethics, University of the Witwatersrand. Glaudina Loots, Director – Health Innovation, Department of Science and Innovation, South Africa. Ciara Staunton, Institute for Biomedicine, Eurac Research, Italy. Glenda Gray, President and CEO of the SAMRC. Ames Dhai, University of the Witwatersrand and Chair of the MRC Bioethics advisory panel. Melodie Labuschaigne, School of Law, University of South Africa.
South Africa Latest News, South Africa Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
What happens to your debt and taxes when you die in South AfricaDeath is not absolute when it comes to your debt and taxes in South Africa.
Read more »
How to invest in your 20s and 30s in South AfricaThe recent downturn in global investment markets has understandably made many aspiring investors a little nervous about putting their money into the share market.
Read more »
Challenging the stigma of male infertility in South Africa
Read more »
Miss South Africa finalists send special messages to dads on Father's Day | ChannelFather's Day is celebrated annually on the third Sunday in June in many countries worldwide, including South Africa. | Channel24
Read more »
South Africa supports the WTO decision to waive intellectual property rights on vaccine productionICYMI [VIDEO]: South Africa has thrown its weight behind the decision of the World Trade Organization to waive intellectual property rights on vaccine production.
Read more »
New rules planned for medical cannabis in South AfricaWhile much has been said in the media regarding the lawful commercialisation of cannabis for recreational use, South Africa’s role as a global player in the medicinal cannabis market shouldn’t be underestimated, says legal firm Cliffe Dekker Hofmeyr.
Read more »