NHS system for seriously ill people requiring home care is struggling to provide sufficient support.
When Declan Spencer's care falls through, it's his mother Alex who takes on the roleFamilies of people with complex medical needs are warning the NHS system that funds their care at home is struggling to provide sufficient support.
They chat at the table about his dating app experiences as Alex feeds him breakfast, interrupted by calls from a care company and specialist equipment provider that need her attention. Scotland and Northern Ireland have different approaches to managing patients with high-level healthcare needs at home.
Its managing director, Dan Harbour, said the Continuing Healthcare scheme was "in a perfect storm of financial constraints and significant recruitment challenges". The family say Declan's CHC team has repeatedly downplayed his needs when introducing them to new care companies. Under the Continuing Healthcare framework, this shortage should not mean the responsibility for care falls on the patient's family.
In emails, his CHC team told the family it had been following procedure for increasing care packages.In May, the family received the news from doctors they had feared. Declan is now considered as "end-of-life" and has months to live. "I'm still staying up overnight on my own to care for him. And it's worse than before, because Dec's health needs are now greater.The teams commissioning and managing Declan's care - Leicester, Leicestershire and Rutland ICB and NHS Midlands and Lancashire Commissioning Support Unit - told us they were continuing to work with the family to ensure Declan has the care he needs.
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