The outlook for those diagnosed with ALS can appear bleak, but a front\u002Dline forward such as Mark Kirton keeps referring to “the never\u002Dending battle.”
Two years ago, wishing to share stories and personally frustrated at how long it took levels of government to approve drugs meant to slow the progression, Kirton called other PALS to form ALS Action Canada.Article content
“Ours and certain other groups such as ALS Canada are pushing hard to speed it up . Three main goals of ALS Action Canada are faster government pathways and affordability for drugs, ALS advocacy and more research funding through government means. We’re talking to Health Canada a lot, to drug companies, provincial ALS alliances, MPPs, MPs and whoever else we think can help our cause. We want to be a mover and shaker group, really make some noise.
“These are by no means anything close to a cure, but at least it gives us hope of some more life while we pray for a cure,” Kirton wrote in a recent fundraising letter. “The disease is 80-years-old and you look at how quickly they’ve come up with a vaccine for COVID-19, you wonder if enough research has been done about ALS since Gehrig died.”
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