As a former direct care worker, I am fighting for living wages and labor protections for this underpaid work force.
The federal government must step in because states have not picked up the slack. We must build a robust federal paid family and medical leave program, create a strong national child care system, make transformative investments in aging and disability care, and set a standard of fair pay for all care workers.
Our nation has historically treated caregiving as invisible and not valued work because some of the earliest care workers in the United States were enslaved African women. Today, Black women continue to experience the deepest harms from the lack of investment in care.It’s no accident that women — mostly underpaid Black, Brown and immigrant women — are expected to do care work without proper support, compensation or recognition.
Chris is 33, autistic, and receives Medicaid home- and community-based services in Illinois. Throughout his life, my family has had to fight hard for inclusion, for consideration and for the services that he needs. So, it is never far from my mind how different his life could look without the supports that he receives.
When I was writing this, I asked my brother to share his thoughts on this issue. He typed, “I want more support, I am very frustrated and I feel that my progress is being hurt. I need more regular scheduled DSPs and they deserve to earn more because of the work they do and so they stay. I have no patience anymore.”
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