Kevin O'Connor lost his mother and daughter to the same disease. He made sure their deaths were treated differently

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Kevin O'Connor lost his mother and daughter to the same disease. He made sure their deaths were treated differently
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Both women shared a mutated gene and died from the same disease in their 40s, but Kevin wanted to change the way death and grief were experienced by his family.

died in 1950, and at the time"It wasn't talked about much at all," Kevin says.Nor did he and his brother attend her funeral, "the judgement being that we were too small, too young", he says.aunt, where he found a notice on the door saying, 'Closed due to a bereavement in the family'.

"The day of [Kath's] funeral, the funeral director put notepads all around the room where we had the celebration and just encouraged people to write notes to her [and] us," Kevin says. Kath's young nieces and nephews have very consciously been included in celebrating her life and grieving her death.

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