Kenyan Lea Kilenga Bey campaigns for better treatment for those who have the genetic disease.
A woman at the clinic put her hand up to ask a question.
"A lot of communities attribute sickle cell to ancestral curses, witchcraft," Ms Bey told BBC Africa Eye. "The majority of people who have less $1 [£0.80] or $2 a day will not sacrifice the meal of their home to buy this expensive medicine," Ms Bey said.She knows more than anyone what it is like to experience what is known as a sickle cell crisis - extreme pain caused by the blockage of a blood vessel, which can affect any part of the body.
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