Teens with complex medical conditions often need formula to avoid becoming malnourished. With the shortage, many families can't find enough.
Devon McCollum and Natasha Hall faced a dilemma that no parent wants to consider: Should they give their daughter, Charlotte, the recalled formula they had or take her to the hospital to be fed?
Charlotte is nonverbal but has a "really funny personality" and loves bobbing and dancing to music. Even as she faces GI troubles due to the formula shortages and changes, she a happy teen.Charlotte’s medical team from Children’s Hospital of Philadelphia transitioned her to a new formula, Hall said, and that seems to be going OK so far.
Freida has eosinophilic esophagitis, autonomic dysfunction and GI motility problems. Last fall, her lack of nutrition affected her ability to stay awake in class. Then she started having dizzy spells. Doctors at CHOP treated her for dehydration and gave her an NG tube to help her get nutrition in a less painful way. She was prescribed one of the now-recalled Abbott Nutrition formulas.
“Someone had the chutzpah to tell me, ‘Well why don’t you just nurse her?’ She’s 16! Secondly, swallowing is the issue, that’s what causes her pain,” Atkins said. “Nursing is not even an option.”Bryan and Alison Harding have twin daughters, Hannah and Sarah, 16, who both use formula for their nutrition. They have cerebral palsy, seizure disorders, reflux and trouble breathing. While Hannah’s formula was not recalled, Sarah’s was. The family felt stunned by the news.
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