Here, Jono James shares his experience with cystic fibrosis, including how he came to terms with his diagnosis, the mental impact of the condition, how he supports his body, and his advice to others.
. In mindbodygreen's series, we're giving individuals with invisible illnesses a platform to share their personal experiences. Our hope is their stories will shed light on these conditions and offer solidarity to others facing similar situations.
The doctors also told them not to try any alternative care or medicine. In their words, it just wouldn't work. Initially, my life expectancy was between 10 and 14 years old. Thankfully, my parents ignored that advice, and my mom made it her full-time job to research anything and everything that could help my condition. This was just before the internet was around, so she would go to the local library every day, read journal articles, print them out, and bring them home.
Eventually, I started telling a few people about what I was going through. Sharing my experience seemed to help others cope with whatever condition they themselves were dealing with. That got me thinking that the greatest good would be for me to start telling my story. With cystic fibrosis, the only sign that most people have is a fairly constant cough. Apart from that, a lot of people struggle with gaining weight and then have issues with antibiotics, as well.
, which is something I used to struggle with, and the other on how to address type 2 diabetes with diet and exercise.This ad is displayed using third party content and we do not control its accessibility features.My condition is always on my mind, like a dark cloud that follows me around. And while it is an incredible burden, I've had to shoulder it all my life, so I don't really know anything different.
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