Nikki’s 2 sons have MEPANDisease, a genetic neurological disorder w/ only 13 recorded cases in the world. Those who aren't vaccinated for COVID19 put her kids at risk. Read about her wish for her children & caregivers everywhere:
About a year after Carson was born, our second son, Chase was born. He also has MEPAN syndrome. Both he and his brother are on the more severe end of the MEPAN spectrum and have serious challenges as a result of the condition. Neither is able to sit, stand or feed himself independently. They both wear diapers, and use a wheelchair and talking devices since they cannot speak.
There’s really nothing we wouldn’t do for our boys, but there is only so much within our power. For some things — like protecting them from certain preventable diseases — we must rely on others.
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