While myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are not the same disease, they appear to have features of overlapping biological and symptomatic presentations. Many people with long COVID meet the diagnostic criteria of ME/CFS. Long COVID scientists and clinicians can expedite research and care protocols by utilizing information and experiences gained from the ME/CFS community.
aims to provide a better understanding of the ME/CFS and long COVID disease process and lived experience and provides tools to improve the overall care of patients.
"However, with the onslaught of long COVID, more attention has been given to the devastating impact this disease has on quality of life. These patients need more qualified care providers who have the most up-to-date research, care guidelines, and the inquisitiveness to solve difficult medically complex cases.
It is the clinician's role in the care of patients with PEM/PESE to identify the symptoms that most interfere with activities of daily living; assist the patient with prioritizing meaningful and purposeful tasks; and analyze activities for modifications and adaptations.
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