Caregiving and Downsyndrome: Laura LaChance, director of CdnDownSyndrome and mom to Kevin, advises caregivers to find a network and don't forget about yourself — via healthing_ca WorldDSDay SpecialOlympics OntCaregivers CaregiversAB CdnCaregiving
Nathan and Michael have rearranged their lives to keep their son alive amid lack of social supports, insufficient mental health care, policing issues and financial strain.Anytime that you add a child with a disability to your family, you don’t know what the challenges are going to be, and you think that they’re going to be all-consuming.
There was a real sense of camaraderie and it was a great way to understand more about what to expect and how we can better support Kevin. Through the years, we also had an opportunity to give back and help other new parents by sharing our experience. Unfortunately, because many of the family support groups typically cater to prenatal and postnatal babies, toddlers and children starting school, eventually, Kevin’s interest in participating in the group waned.
Laura LaChance , and her son Kevin : “When one is challenged you always think ‘Why me?’ in private moments. But your family and friends help you to dust off and push forward. This is very energizing.” SUPPLIEDSome of the therapies that are recommended and covered by the government have very long wait-lists now, but when we were dealing with it in 1992, it wasn’t quite the same. We had no challenge getting supports for Kevin.
There is incredible value in connecting with other families who have walked in your shoes. I think that it’s also very important for caregivers to look after themselves and not get themselves to a point where they’re totally burned out.
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