Tragic details have been revealed about twins with a disorder that causes them “certain death” if they go outside.
Simple everyday pleasures like going for a walk outside or swimming at the beach would be enough to commit twins Thomas and Vincent to “certain death”.
The 23-year-olds were born with an incredibly rare genetic disorder called Xeroderma Pigmentosum which makes them fatally allergic to ultraviolet light, including sunlight,Their parents, Bernard and Françoise, both carried a genetic mutation that predisposed both sons to the condition, which is so rare it affects just one in a million.Doctors believed that the two boys would not survive past their teens.
The red marks were later revealed to be small cancers, which ended up growing on their face, arms and legs.The red marks on their bodies were later revealed to be cancers/While doctors predicted the twins wouldn’t survive their teenage years, the family has adopted a series of measures to limit their exposure to ultraviolet light.
Their home in France has windows with filters over them to prevent sunlight from getting inside, similar to what would protect museum exhibits from being damaged.The rare condition effects just one in a million individuals.The only way the brothers can safely go outside is if they cover their body completely, so each of them have an ultraviolet resistant spacesuit and mask.
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