Every speech, every conversation I’ve ever had about cystic fibrosis has been prefaced with, ‘I’m not the best example of the worst of CF’
I was turning a screwdriver to assemble a patio chair when I realized that nothing would ever be the same again. I wish I could tell you that this life-changing moment came while I was witnessing a vivid sunset or while my husband held my hand and stared into my eyes with love or while I snuggled with my dog. But no, it was while I cursed a screw that just wouldn’t fit in its threading.
I have cystic fibrosis , a brutal lung disease that impacts multiple organs and promises a slow, painful progression that eats away lung tissue until you feel as though you’re breathing through a straw while your nose is plugged. Ultimately you find yourself on a waitlist for a lung transplant as a last-ditch effort to save your life.
CF is a rare disease, it’s chronic, and those who have it have waited a lifetime for a life-changing drug. Recently, a pill called Trikafta became available in Canada. It’s the close-as-we’ve-ever-been-to-a-cure drug that I took for the first time that morning.
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