“[The lack of knowledge] is this combination of medical racism and medical neglect combined with the biology of how this parasite works in the body.”
Raised in New Jersey to Colombian and Cuban parents, Daisy Hernández has produced a feminist anthology and memoir, and now a book that sheds light on an insidious disease. Photo: Bosch Studios
Born and raised in New Jersey to a Colombian mother and Cuban father, Hernández talked to IDAR/E about not only, but also the impact of putting her and our stories out there, unconditionally.How challenging was it to raise awareness about Chagas amid the COVID19 pandemic?in healthcare, and so that actually gives readers some context for Chagas disease.
Part of the reason is that this parasitic disease can be very silent in the body so that someone can live up to three decades and neither have symptoms nor realize that their symptoms are related to cardiac complications. This is not ebola. This is more like Lyme disease in certain ways, where the symptoms can be a little confusing for people. If doctors don’t know that they should be looking for Chagas disease, they could think that you have a heart problem of unknown origin.
In your book and memoir, you share personal stories about your family. How does that go over with them? “I don’t write my books for my family. I write them for versions of me that might be out there and need the book”. Having that experience and given where we are at now with a reckoning around race and media, do you see any real shifts?
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